Mid-Atlantic Region III Core Center for Federally Funded HTCs

A national network of more than 140 Hemophilia Treatment Centers (HTCs) is supported and funded by the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA) and the Centers for Disease Control and Prevention (CDC). HTCs are specialized health care centers staffed by a team of doctors, nurses, social workers, physical therapists and other health professionals with expertise in the treatment of bleeding disorders.

For Parents and Caregivers

If your child has a bleeding disorder, using a 340B program can offer some unique benefits to you.

How the 340B Factor Distribution Program benefits you

As you may know, federally funded Hemophilia Treatment Centers (HTCs) provide comprehensive care to people with bleeding and clotting disorders. HTCs bring together an experienced team of doctors, nurses, social workers, physical therapists, and other health professionals. HTCs have received some government support to provide these services since 1973, but while the numbers of patients, complexity of care, demands, and health care costs have gone up, federal funding levels have gone down. 

Benefits of 340B programs

As an outpatient, you can choose to buy clotting factor through your HTC. The 340B program, created by Congress in 1992 as part of the Veterans Health Care Act, allows HTCs to purchase clotting factor at a discount for their patients. Home care companies and pharmacies that are independent of the HTC do not qualify for this discount. Some of the savings provided to HTCs can be passed along to you, which can lower your cost for factor purchased through the HTC.

The most important benefit of the 340B program is that it provides funding for your HTC. These funds make it possible for HTCs to continue serving you with the high level of services and quality of care you expect. Without these additional funds, the cutbacks in government funding will leave HTCs without enough money to continue these services. With the funds from 340B factor sales HTCs will be able to continue providing comprehensive care, and perhaps even expand some services.

Ordering and support

If you currently use a home care company, ordering from the 340B program will be very similar. Your HTC staff places the order for your clotting factor and supplies, which are delivered directly to you. Nursing services for home infusion are available through this service as well. Your insurance claims are filed for you and customer support is available for billing and claims questions.

Voluntary participation

You will continue to receive all available HTC services even if you choose not to participate in your HTC’s 340B program. Keep in mind, however, that HTC services will be available only as long as they have the needed funding.

Using the 340B factor program is entirely voluntary – the choice is up to you.

More information

For more information on 340B programs and deciding the best option for you and your family, talk to your HTC.

Frequently Asked Questions

When you buy clotting factor from your HTC, you are helping to make sure that the center has enough funds to continue providing the best quality comprehensive care for you. The cost to you and your insurance may be less. Also, the close relationship between the pharmacy and your HTC helps assure that there are no communication gaps.

No, you should be able to get the same clotting factor you are using now.

Actually, since HTCs purchase factor at a discounted rate, your cost may be less.

Ordering from the 340B program will be very similar to your current experience. Your HTC staff places the order for your clotting factor and supplies and files your insurance claims. Nursing services for home infusion and other support services for billing and claims questions are available. 

No, you will continue to receive all the available HTC services, as long as the center continues to have funding.