Clinical Trial: Cancer

ACCRN07: Childhood cancer registry (PRO00000505)

Full Name
ACCRN07: Protocol for the Enrollment on the Official COG Registry, the Childhood Cancer Research Network (CCRN)

Description

The Children's Oncology Group has established a research network, known as the Childhood Cancer Research Network (CCRN), for collecting information about children with cancer and other conditions that are characterized by abnormal cell growth but are benign (not cancer) in order to help doctors and scientists better understand childhood cancer. Participants will be provide information such as their name, date of birth, zip code, type and characteristic of their disease, date the disease was diagnosed, the COG institution where they were treated, their social security number, their race and ethnicity, etc. In addition, the researchers would like to obtain permission to contact the participant in the future to consider participating in other CCRN research studies. The information collected can be used to answer questions such as whether childhood cancer is increasing across the United States or Canada, and whether there is a higher risk of cancer among some groups compared to others. The information can also be used to help the researchers study the causes of childhood cancer.

Eligibility

Inclusion Criteria
  • Anyone from newborn to 21 years of age who have been diagnosed with a primary malignancy that meets all required criteria
  • Must sign informed consent
  • Must be a resident of the United States, Canada or Mexico