Patient resources

During your cancer journey, Lehigh Valley Topper Cancer Institute clinicians and educators will explain your diagnosis and treatment options, answer your questions and support you along the way. We also understand you may want to do your own research at times, and we would like to recommend the following trustworthy and reliable resources. Our commitment is to offer you the most comprehensive support.

Please note that LVHN does not own or manage content on websites other than LVHN.org and is providing links to these resources for more convenient access.

NMDP (formerly known as the National Marrow Donor Program and Be The Match)
For the thousands of people diagnosed every year with life-threatening blood cancers like leukemia and lymphoma, a cure exists. Over the past 35 years NMDP has managed the most diverse marrow registry in the world and works every day to save lives through transplant.

Blood & Marrow Transplant Information Network
Blood & Marrow Transplant Information Network (BMT InfoNet) is a leading advocacy organization for transplant and CAR T-cell therapy recipients before, during and after treatment. Founded in 1990, BMT InfoNet has pioneered a vast array of services to help transplant patients make critical decisions throughout their transplant journey.

Center for International Blood and Marrow Transplant Research (CIBMTR)
CIBMTR is a collaborative resource of data and experts supporting research in cellular therapies to improve patient outcomes. Their vision is to be the premier data and resource solution for cellular therapy.

Leukemia & Lymphoma Society
Leukemia & Lymphoma Society (LLS) is a national voluntary health agency dedicated to curing leukemia, lymphoma, Hodgkin's disease and myeloma, and to improving the quality of life of patients and their families.

Multiple Myeloma Research Foundation
The Multiple Myeloma Research Foundation (MMRF) is the largest nonprofit in the world solely focused on accelerating a cure for each and every multiple myeloma patient. They drive the development and delivery of next-generation therapies, leverage data to identify optimal and more personalized treatment approaches and empower myeloma patients and the broader community with information and resources to extend their lives.

National Cancer Institute
National Cancer Institute is the federal government's principal agency for cancer research and clinical training. Its website provides information on cancer statistics, clinical trials and research programs. The entire site can be translated into Spanish as well.

Clinicaltrials.gov
ClinicalTrials.gov is a place to learn about clinical studies from around the world.

nbmtLINK.org
National Bone Marrow Transplant Link (nbmtLINK) has supported patients, caregivers and healthcare professionals, providing psychosocial and educational support as it relates to the bone marrow/stem cell/CAR-T Cellular Therapy journey.