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The Family Support Specialist is responsible for organizing and overseeing the activities of the pediatric and adult Down Syndrome Clinic and other activities related to patient care, recommendations, education and support for all family members. The coordinator may need, and must be able to, communicate with different specialists when necessary and ensure adequate patient care during the evaluation process. When possible, the coordinator may be asked to answer questions between evaluations at the clinic.

Job Duties

• Work collaboratively with the physician and therapist to provider medical, educational, social, and therapeutic information to families
• Direct staff and patients toward appropriate and available resources both internally and externally
• Implement all LVPG Down Syndrome Clinic policies and procedures
• Maintain confidentiality of all materials handled within the clinic as well as the proper release of information if needed following HIPPA
• Attend and participate in staff meetings and have the ability to work remotely
• Complete timely and accurate documentation (EPIC) of patient visit

• High School Diploma/GED
• 5 years Working or caring for an individual (s) with Down Syndrome
• Familiar with the health care guidelines for children, adolescents and adults with Down Syndrome
• Knowledge of community resources available to families and individuals with Down Syndrome
• Commitment to educate oneself in all topics related to Down Syndrome

• Innovative thinker with strong conceptual and problem-solving skills
• Meticulous attention to detail
• Strong organization, administrative and planning skills
• Ability to work independently and as part of a team
• Passionate about clinical excellence and having a positive impact on the lives of individuals with Down Syndrome

Lift and carry 25 lbs. frequent sitting/standing, frequent keyboard use, *patient care providers may be required to perform activities specific to their role including kneeling, bending, squatting and performing CPR.

Job Description Disclaimer: This position description provides the major duties/responsibilities, requirements and working conditions for the position. It is intended to be an accurate reflection of the current position, however management reserves the right to revise or change as necessary to meet organizational needs. Other responsibilities may be assigned when circumstances require.

Lehigh Valley Health Network is an equal opportunity employer. In accordance with, and where applicable, in addition to federal, state and local employment regulations, Lehigh Valley Health Network will provide employment opportunities to all persons without regard to race, color, religion, sex, age, national origin, sexual orientation, gender identity, disability or other such protected classes as may be defined by law. All personnel actions and programs will adhere to this policy. Personnel actions and programs include, but are not limited to recruitment, selection, hiring, transfers, promotions, terminations, compensation, benefits, educational programs and/or social activities.

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